The Foundation offers a wide range of free services to Patient members.
The Foundation is keen to assist patient members who are facing financial
difficulties as a result of their medical conditions.
The Foundation offers various means of Emotional support that can make a
real difference to patients and families.
Our Health coordinator is available to meet with families in person, at home
or at hospital clinics as requested. Contact can also be by telephone if
Events and Sponsorship
The Foundation offers a regular program of patient events held all around
the country. Most of these events are free to attend and open to all patient
members and their direct family.
The support coordinator can help families under stress deal more effectively
in accessing information and services related to their medical situation. Over
the years we have helped many families with situations involving Hospital/
medical staff, employers, government agencies, schools, etc. It sometimes helps
to have someone to call on for independent help or assistance when processing a
lot of new information, trying to find answers or simply running out of energy
due to the stress and shock of these illnesses.
Medical Specialist Support
The Foundation encourages medical professionals working with individual
PID/Transplant patients to register with the Foundation . We offer the
opportunity for you to keep up to date on the latest information available on
these rare conditions, to hear first hand about our Medical professional
seminars and visiting speakers, as well as access to patient information
The Foundation is committed to offering respite care to patient members /
families affected by the pressures of ongoing health issues.
We now have four respite homes that are available for use by our Patient
members; these facilities are very precious to us and we are grateful to all of
the Trusts , businesses and individuals that have helped us to fundraise to
establish and maintain these for our members.